Text says: Without love and acceptance, all the support in the world wouldn't be enough. Green text on a white square over a green coloured background. The words love and acceptance have been highlighted.

Would I share my child’s worst day?

Parents of Autistic children are often told that in order to access support services, you need to base your story on your child’s worst day. I have heard this many times. I have often had applications for services and support declined because I didn’t tell them about my son’s worst days.

Text says: I remember the day... Dark grey text on a purple circle over a purple background with illustrated leaves.

I remember the day…

[CN: parental abandonment]
I’ve shared this story with two friends today, but I think it’s a story worth telling everyone. Some details will be left out because parts of it are not my story to tell. I have a younger half-sister (my mother’s child, not my father’s child), and I won’t tell that part of the story for her.

Text says: Unity. White text over a red-coloured image of a tied rope.

Unity

I’ve seen the idea of unity come up a lot this week. I’ve written about unity before, but I have some more words to write about it since it seems to be such a big thing.
A particular call for unity stands out to me:
“We’re all on the same page. We should be working together.”

Text says: I will not let my hangnail define me. Grey text on a semi-transparent white square over a purple-coloured photo of a hand.

I will not let my hangnail define me!

Wait – what?
I woke up this morning to a parent insisting that she would not allow autism to define her son, just as she wouldn’t allow high blood pressure, psoriasis, or hangnails to define anyone.
So, um, yeah.
That brings us to the whole labelling debate which really isn’t even be a debate. It isn’t a debate because a world without labels would look like like this:

Text says: maybe i understoof you perfectly. Grey embossed text on a dark green square over a light green background.

Maybe I understood you perfectly

[TW: Seclusion/Restraint]
An article was recently published which alleges that a box was constructed for the seclusion of Autistic people at a site operated by Autism Spectrum Australia (Aspect), which is one of Australia’s autism service providers. They say they’re the largest and they probably are because they’ve gobbled up other smaller service providers.