Parents of Autistic children are often told that in order to access support services, you need to base your story on your child’s worst day. I have heard this many times. I have often had applications for services and support declined because I didn’t tell them about my son’s worst days.
[CN: parental abandonment]
I’ve shared this story with two friends today, but I think it’s a story worth telling everyone. Some details will be left out because parts of it are not my story to tell. I have a younger half-sister (my mother’s child, not my father’s child), and I won’t tell that part of the story for her.
I’ve seen the idea of unity come up a lot this week. I’ve written about unity before, but I have some more words to write about it since it seems to be such a big thing.
A particular call for unity stands out to me:
“We’re all on the same page. We should be working together.”
I have been putting off blogging about this because I really wanted to see whether Aspect would delete the comment that I blogged about yesterday, but they haven’t as yet. I had hoped that they would, but apparently that comment isn’t deemed to be disrespectful under their house rules.
Wait – what?
I woke up this morning to a parent insisting that she would not allow autism to define her son, just as she wouldn’t allow high blood pressure, psoriasis, or hangnails to define anyone.
So, um, yeah.
That brings us to the whole labelling debate which really isn’t even be a debate. It isn’t a debate because a world without labels would look like like this:
An article was recently published which alleges that a box was constructed for the seclusion of Autistic people at a site operated by Autism Spectrum Australia (Aspect), which is one of Australia’s autism service providers. They say they’re the largest and they probably are because they’ve gobbled up other smaller service providers.